For almost a year. After a car accident that gave me muscular whiplash and neck and back problems.I was diagnosed first with PTSD(post traumatic stress disorder) and now I have been having these seizures.now I have been diagnosed with pseudoseizures as well., unfortunately the doctors told me what I had and didnt explain it in any sort of detail.
I actually found all my information online. its very frustrating to have this disorder.im not allowed to be alone, cant drive anymore, coz I never really know when they are going to come on.i would have these severe migraines which in turn would cause or trigger these’seizures’ or spells or fits as they called them. I was beginning to think I was crazy. And no medicine was working.
I have been on differnt antiseizure medications.still havent gotten the right medication as of yet.im trying to learn to deal with them the best I can.it can be quite depressing tho, not being able to do anything.i have to stay out of stressful situations which could also trigger the seizures, which is quite hard.everyone has some sort of stress.how in the world are u supposed to not have any stress in your life? I dont go anywhere alone.becuz of never knowing when I will have one.
I have to make sure someone is always with me, just in case, least thats what the doctors say. Then sometimes the doctors make me feel as tho’im faking’ or jst looking for attention.I am terrified of hospitals.and in NO WAY would I willingly want to go into the hospital.
So why in the world would I fake something so serious as this? plus I dont even remember that I had a seizure until someone tells me.I have even lost memory of up to 6 hours BEFORE the seizure. So why doctors would think I would WANT to fake this is jst mind blowing to me. They used to make me feel as tho I need mental help.I have never had any mental problems before.and I wasnt until after a car accident that this started happening.
Until recently I thought that I was the only person who had these.then I found with the help of the internet, that there really are others and I’m not crazy or im not the only one. I have found others to talk to about this.who actually understand.becuz it seems to me, doctors dont understand this completely. But at least I know I’m not alone.