Normal kids would be going to school, would be enjoying trekking, etc. but there are some childrens on this planet who can’t even bear the dawn of winter and so no question arises for them to bear the sunlight of summer. If such kids are compelled to stand in sunlight at 12:00 noon in summer they would die in less than 10 minutes.
Did anyone of you get what I am talking about? I am talking about a disease which a layman would call’ZAPY’ but in medical terms its called’XERODERMA PIGMENTOSUM’.
What exactly is’XERODERMA PIGMENTOSUM’(XP)?
A body produces certain enzymes which protects it from sunlight, but, when a body stops producing those enzymes it gets affected by XP.
HISTORY
First case for XP was recognised in late 60’s or early 70’s in U.K. .
Who is the victim?
Anyone can be victim of it, but, till yet childrens are the only victims of XP and it hasn’t been found in any adults.
CONSEQUENCES
If a XP affected child is compelled to stand for only 30 minutes in sunlight at the time of sunrise than that child would have a damage to the extent of third degree burn i.e. 60% to 75% of body is burned.
Just at an age of 9 - 10, they would look like a person aged 45 - 50.
By 8 most of all children would either have skin cancer or any other severe skin disease.
MAXIMUM AGE LIMIT:- 16 years
LIMITATIONS
Out of every 500, 000 survivals, 1 child gets affected by XP and so large pharmaceutical companies aren’t ready to provide funds for research of XP which is having such a low ratio.
Some renowned scientist( I wouldn’t name) have stated:’when every year millions of people is killed by cancer and aids than who the hell is going to care for a few thousand deaths in a decade’.
To start basic research minimum fund of 1 million dollar is required.
STRENGTHS
- Only two scientist, one is the head of pathology department of New Jersey University, Dr. Lambert and the other is Dr. Bush who are doing research for evading XP.
2.’Sundown Camp’ in New York is working for the welfare of such patients.
- NASA is making suits for such patients so that they can move freely in sunlight which cost$ 1800, but, the limitation attached to it is that the childrens aren’t able to carry the weight of suit and once the suit is damaged a little it needs to be replaced and so we are back to square one.
ROUTINE
Good morning for us, good night for them; good evening for us, good morning for them.
PREMATURE STAGE
Due to lack of funds, the research work after almost 3 decades is still at its premature stage.
Is everyone ready for another war( not star wars) simultaneously with war against cancer and aids, and if not ready, then, start gathering your weapons because the battlefield is ready and first attack on us has already been done, now, its our turn, otherwise.